S-1987

AN ACT Relating to residential care options for medically fragile children; amending RCW 74.15.010 and 74.15.020; adding a new section to chapter 74.15 RCW; and creating a new section.

BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF WASHINGTON:

NEW SECTION. Sec. 1. The legislature finds that medical advances have enabled many children to survive severe, life-threatening injuries, illnesses, and births. Many of these children subsequently require life support systems and substantial nursing care and monitoring for years. The legislature recognizes that the extraordinary in-home care needs of some medically fragile children may jeopardize family integrity and threaten the child's health and safety. Washington currently offers a limited range of long-term care options for medically fragile children. The legislature declares that the availability of an array of residential and family resource options enables parents and caregivers of medically fragile children to preserve family wholeness and maintain family involvement while meeting the health, safety, and developmental needs of their child.

Sec. 2. RCW 74.15.010 and 1983 c 3 s 192 are each amended to read as follows:

The purpose of chapter 74.15 RCW and RCW 74.13.031 is:

(1) To safeguard the well-being of children, expectant mothers and developmentally disabled persons receiving care away from their own homes;

(2) To strengthen and encourage family unity and to sustain parental rights and responsibilities to the end that foster care is provided only when a child's family, through the use of all available resources, is unable to provide necessary care;

(3) To ensure the availability and development of an array of residential and family resource options that sustain family involvement, preserve family integrity, and appropriately meet the health, safety, and developmental demands of medically fragile children;

(4) To promote the development of a sufficient number and variety of adequate child-care and maternity-care facilities, both public and private, through the cooperative efforts of public and voluntary agencies and related groups((.));

((~~(4)~~)) (5) To provide consultation to agencies caring for children, expectant mothers or developmentally disabled persons in order to help them to improve their methods of and facilities for care;

((~~(5)~~)) (6) To license agencies as defined in RCW 74.15.020 and to assure the users of such agencies, their parents, the community at large and the agencies themselves that adequate minimum standards are maintained by all agencies caring for children, expectant mothers and developmentally disabled persons.

Sec. 3. RCW 74.15.020 and 1988 c 176 s 912 are each amended to read as follows:

For the purpose of chapter 74.15 RCW and RCW 74.13.031, and unless otherwise clearly indicated by the context thereof, the following terms shall mean:

(1) "Department" means the state department of social and health services;

(2) "Secretary" means the secretary of social and health services;

(3) "Agency" means any person, firm, partnership, association, corporation, or facility which receives children, expectant mothers, or persons with developmental disabilities for control, care, or maintenance outside their own homes, or which places, arranges the placement of, or assists in the placement of children, expectant mothers, or persons with developmental disabilities for foster care or placement of children for adoption, and shall include the following irrespective of whether there is compensation to the agency or to the children, expectant mothers or persons with developmental disabilities for services rendered:

(a) "Group-care facility" means an agency, other than a foster-family home, which is maintained and operated for the care of a group of children on a twenty-four hour basis;

(b) "Child-placing agency" means an agency which places a child or children for temporary care, continued care, or for adoption;

(c) "Maternity service" means an agency which provides or arranges for care or services to expectant mothers, before or during confinement, or which provides care as needed to mothers and their infants after confinement;

(d) "Day-care center" means an agency which regularly provides care for a group of children for periods of less than twenty-four hours;

(e) "Foster-family home" means an agency which regularly provides care on a twenty-four hour basis to one or more children, expectant mothers, or persons with developmental disabilities in the family abode of the person or persons under whose direct care and supervision the child, expectant mother, or person with a developmental disability is placed;

(f) "Crisis residential center" means an agency which is a temporary protective residential facility operated to perform the duties specified in chapter 13.32A RCW, in the manner provided in RCW 74.13.032 through 74.13.036.

(4) "Agency" shall not include the following:

(a) Persons related by blood or marriage to the child, expectant mother, or persons with developmental disabilities in the following degrees: Parent, grandparent, brother, sister, stepparent, stepbrother, stepsister, uncle, aunt, and/or first cousin;

(b) Persons who are legal guardians of the child, expectant mother, or persons with developmental disabilities;

(c) Persons who care for a neighbor's or friend's child or children, with or without compensation, where the person does not engage in such activity on a regular basis, or where parents on a mutually cooperative basis exchange care of one another's children, or persons who have the care of an exchange student in their own home;

(d) Nursery schools or kindergartens which are engaged primarily in educational work with preschool children and in which no child is enrolled on a regular basis for more than four hours per day;

(e) Schools, including boarding schools, which are engaged primarily in education, operate on a definite school year schedule, follow a stated academic curriculum, accept only school-age children and do not accept custody of children;

(f) Seasonal camps of three months' or less duration engaged primarily in recreational or educational activities;

(g) Hospitals licensed pursuant to chapter 70.41 RCW when performing functions defined in chapter 70.41 RCW, nursing homes licensed under chapter 18.51 RCW and boarding homes licensed under chapter 18.20 RCW;

(h) Licensed physicians or lawyers;

(i) Facilities providing care to children for periods of less than twenty-four hours whose parents remain on the premises to participate in activities other than employment;

(j) Facilities approved and certified under chapter 71A.22 RCW;

(k) Any agency having been in operation in this state ten years prior to June 8, 1967, and not seeking or accepting moneys or assistance from any state or federal agency, and is supported in part by an endowment or trust fund;

(l) Persons who have a child in their home for purposes of adoption, if the child was placed in such home by a licensed child-placing agency, an authorized public or tribal agency or court or if a preplacement report has been filed under chapter 26.33 RCW and the placement has been approved by the court;

(m) An agency operated by any unit of local, state, or federal government or an agency, located within the boundaries of a federally recognized Indian reservation, licensed by the Indian tribe;

(n) An agency located on a federal military reservation, except where the military authorities request that such agency be subject to the licensing requirements of this chapter.

(5) "Requirement" means any rule, regulation or standard of care to be maintained by an agency((.));

(6) "Medically fragile children" means individuals up to age eighteen who: (a) Have chronic health-related dependence, (b) continually, or at unpredictable times, need twenty-four hour a day skilled health care interventions and supervision, and readily available skilled health care providers, and (c) may, without immediate health care intervention, experience irreversible damage, death, or rapid deterioration if the technological support and services being received are interrupted or denied.

NEW SECTION. Sec. 4. A new section is added to chapter 74.15 RCW to read as follows:

(1) The department shall establish a coordinated children's long-term care policy incorporating a continuum of family resource options based on the individual needs and choices of the medically fragile child and his or her family. The policy shall incorporate an array of both in-home and residential family resource options and ensure family involvement and choice in all decisions regarding their child's care.

(2) The children's long-term care policy shall require the department, in collaboration with families, other involved caregivers, and health care providers, to develop an individualized family and child centered plan guiding the utilization of family resource options for medically fragile children. This plan shall be designed to preserve family integrity and involvement and ensure a stable, safe, and nurturing home-like environment that meets the health care needs of the medically fragile child. The department shall assure stability for families and children when planning and utilizing both in-home and residential family resource options.

(3) Residential care options shall include the following:

(a) Specialized group care facilities as defined by RCW 74.15.020 for medically fragile children offering twenty-four hour skilled nursing care, physician services, specialized therapies, psycho-social supports, caregiver training, and educational services in a single setting by contractors or agents of those contractors;

(b) Small specialized medical group homes in residential neighborhoods offering acute skilled nursing care, physician services, specialized therapies, psycho-social supports, caregiver training, and educational services provided by contractors or agents of those contractors;

(d) State operated living alternatives operated by the department.

(4) Residential care options as identified in subsection (3) of this section may provide temporary services to families requiring a break from caregiving or other short or long-term services according to the individualized family resource options plan as defined in subsection (2) of this section.

(5) Nothing in RCW 74.15.010, 74.15.020, or this section shall limit specialized group care facilities to a single, free-standing facility. Agencies may provide more than one type of residential option clustered within a limited geographic area.

(6) The department shall develop an interagency agreement with the department of health that establishes minimum standards and guides the selection of facilities and agencies authorized to establish residential care options for medically fragile children as defined in subsection (3) of this section by December 1, 1991. The department shall submit its plan and schedule for gathering and processing the information necessary to develop the required policy and standards to the legislative budget committee by August 30, 1991. The legislative budget committee shall provide oversight in developing this agreement and the children's long-term care policy and prepare a report to the legislature by December 15, 1991. The report shall make recommendations to the legislature regarding the statutory changes needed to implement the children's long-term care policy.