BP BHEAD INT S [atlas:bill]

AN ACT Relating to informed consent for genetic testing of a person's deoxyribonucleic acid; and adding a new chapter to Title 7 RCW.

BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF WASHINGTON:

NEW SECTION. Sec. 1. (1) Any entity, including any person, obtaining a person's deoxyribonucleic acid in a form that identifies an individual person for purposes of genetic testing must have the person's informed consent.

(2) Informed consent requires:

(a) An explanation of the purpose for which the deoxyribonucleic acid is being obtained, and whether it will be converted into a computerized individual sequence of chemical base pairs or other form for interpretation;

(b) Identification of the entity obtaining the deoxyribonucleic acid and individual sequence;

(c) Disclosure of any entity with whom the deoxyribonucleic acid and individual sequence may be shared, including disclosure that the deoxyribonucleic acid or individual sequence may be shared in the future with an unknown entity;

(d) A statement of the expected duration that the deoxyribonucleic acid and individual sequence may be kept;

(e) A description of reasonably foreseeable risks or harm associated with providing the deoxyribonucleic acid and individual sequence;

(f) An explanation of how the deoxyribonucleic acid will be maintained, whether the physical sample will be destroyed or stored, including how and where it will be stored, and how the individual sequence information will be destroyed or stored, including how and where it will be stored;

(g) A statement describing any reasonably expected benefits or advantages associated with providing the deoxyribonucleic acid and individual sequence;

(h) A statement describing any confidentiality or privacy protections for the deoxyribonucleic acid and individual sequence;

(i) Identification of an individual contact and contact information from whom further information may be obtained or reported relative to the deoxyribonucleic acid and individual sequence;

(j) Provisions explaining whether the deoxyribonucleic acid and the individual sequence can be expunged or removed from the entity that obtained it and the method to do it;

(k) The exclusion of any exculpatory provisions from liability against the entity obtaining the deoxyribonucleic acid and individual sequence;

(l) A disclosure that providing deoxyribonucleic acid and an individual sequence is voluntary; and

(m) Compliance with the federal informed consent requirements, when applicable, which are more protective of individual privacy.

(3) A person's informed consent is not required:

(a) In criminal matters if the deoxyribonucleic acid is obtained pursuant to specific common law or statutory authority or a lawfully issued court order;

(b) In situations where the person requires emergency medical care as long as the person, or his or her representative in death cases, is informed in a timely manner after the emergency that the deoxyribonucleic acid was obtained;

(c) In situations where a person's bodily fluids are obtained without consent pursuant to specific statutory requirement mandating testing; and

(d) In situations where the individual is deceased and the entity requesting the deoxyribonucleic acid establishes in a court of law or through an institutional review board process that obtaining individually identifiable deoxyribonucleic acid for genetic testing purposes benefits public health, safety, and welfare, and outweighs the harm to individual privacy interests.

NEW SECTION. Sec. 2. Section 1 of this act constitutes a new chapter in Title 7 RCW.