WHEREAS, An estimated 135,000 individuals in the United States —
.05 percent of the population of our country — have narcolepsy, a
neurological sleep disorder for which there is no cure and whose cause
is not well understood; and
WHEREAS, More than half of these 135,000 individuals remain
undiagnosed; and
WHEREAS, Narcolepsy is a chronic disorder which causes excessive
daytime sleepiness, cataplexy (loss of muscle tone), hypnagogic
hallucinations, sleep paralysis, and disrupted nighttime sleep in
women, men, and children of all ethnic backgrounds; and
WHEREAS, The quality of life of narcolepsy patients, even with
treatment, is significantly reduced; and
WHEREAS, Patients with this disorder experience excessive daytime
sleepiness, sudden and uncontrollable sleep attacks, loss of muscle
tone triggered by emotional stimuli, realistic and frightening
hallucinations upon waking or falling asleep, an inability to move when
they awaken, automatic behavior, and disrupted nighttime sleep; and
WHEREAS, It often takes an average of ten years to receive a
diagnosis of narcolepsy, and medical professionals frequently are
inadequately educated on the diagnosis and treatment of narcolepsy; and
WHEREAS, Increased awareness and expanded knowledge of the
realities of life with narcolepsy will allow the community at large to
better support people who struggle with the challenges of this chronic
neurological disorder; and
WHEREAS, Narcolepsy Network is a nonprofit charitable organization
serving the needs of patients with narcolepsy and their family members,
friends, and care providers; and
WHEREAS, Narcolepsy Network and other groups around our country
have joined together to promote narcolepsy awareness and support —
including improved education, diagnosis, research, and treatment; and
WHEREAS, Narcolepsy Network is urging narcolepsy patients and their
supporters, health care providers, and the general public to
demonstrate their caring by sharing the road patients walk, the facts
about narcolepsy, and ever-growing awareness about the cause of this
disorder and potential treatments; and
WHEREAS, The community's focus on narcolepsy and its impact on
patients' lives will help guarantee hope for a better future for people
with narcolepsy;
NOW, THEREFORE, BE IT RESOLVED, That the House of Representatives
recognize the needs of these chronically affected people and urge all
of our citizens to support the search for the cause, cure, and
prevention of narcolepsy and assist those individuals and families who
deal with this devastating disorder on a daily basis.