The Governor's Indian Health Advisory Council.
The Governor's Indian Health Advisory Council (GIHAC) was created in 2019 to address issues in the Indian health care delivery system. The GIHAC is tasked with: (1) addressing policies or actions that have tribal implications that are not able to be resolved at the agency level; (2) facilitating better understanding among its members, of the Indian health system and tribal sovereignty; and (3) providing oversight of the contracting and performance of service coordination organizations or service contracting entities, to address their impacts on services to American Indians and Alaska Natives and relationships with Indian health care providers. The GIHAC may appoint technical advisory committees to address specific issues and concerns.
The voting members of the GIHAC are:
one representative from each tribe;
the chief executive officer of each urban Indian organization;
one member from each of the two largest caucuses of the Washington State House of Representatives;
one member from each of the two largest caucuses of the Washington State Senate; and
one member representing the Governor's Office.
The nonvoting members of the GIHAC are:
one member from the executive leadership team of the Health Care Authority, the Department of Children, Youth, and Families, the Department of Commerce, the Department of Corrections, the Department of Health, the Department of Social and Health Services, the Office of the Insurance Commissioner, the Office of the Superintendent of Public Instruction, and the Washington Health Benefit Exchange;
the chief operating officer of each Indian Health Service area office and service unit;
the executive director of the American Indian Health Commission; and
the executive director of the Northwest Portland Area Indian Health Board.
Notifiable Conditions Reporting.
The State Board of Health rules require health care providers, health care facilities, and laboratories to notify certain public health authorities of suspected or confirmed cases of selected diseases or conditions. These diseases or conditions are referred to as notifiable conditions. Public health authorities include local health jurisdictions, the Department of Health, the Department of Labor and Industries, the Department of Agriculture, sovereign tribal nations, and tribal epidemiology centers. For most notifiable conditions, the reporting entity must notify the local health jurisdiction where the patient resides or, in the event the patient's residence cannot be determined, the local health jurisdiction in which the patient received treatment.
Public Records Act.
The Public Records Act (PRA) requires state and local agencies to make all public records available for public inspection and copying, unless a record falls within an exemption in the PRA or another statute that exempts or prohibits disclosure of specific information or records. A "public record" includes any writing containing information relating to the conduct of government or the performance of any governmental or proprietary function prepared, owned, used, or retained by any state or local agency regardless of physical form or characteristics. The PRA must be liberally construed; any exemptions to the disclosure requirement must be interpreted narrowly. Exemptions are permissive, meaning that an agency, although not required to disclose, has the discretion to provide an exempt record. With exceptions, the exemptions under the PRA are inapplicable to the extent that information, the disclosure of which would violate personal privacy or vital governmental interests, can be deleted from specific requested records.
When using or sharing tribal data, the state agencies that are members of the Governor's Indian Health Advisory Council (GIHAC) must do so in a manner consistent with tribal data sovereignty principles. These agencies are: the Health Care Authority, the Department of Children, Youth, and Families, the Department of Commerce, the Department of Corrections, the Department of Health, the Department of Social and Health Services, the Office of the Insurance Commissioner, the Office of the Superintendent of Public Instruction, and the Washington Health Benefit Exchange.
The designated agencies must apply the following tribal data sovereignty principles:
The designated agencies must include tribal data sovereignty principles in data sharing agreements. When developing tribal data sharing agreements, the agencies must refer to the GIHAC tribal data sharing agreement checklist. The agencies must seek input and guidance from the GIHAC tribal data sovereignty committee on issues related to tribal data.
The State Board of Health must adopt rules requiring health care providers, health care facilities, laboratories, and other required entities to report notifiable conditions to tribal health jurisdictions in Washington where the patient resides or, in the event the patient's residence cannot be determined, the tribal health department in which the patient received treatment. The adopted rules must require notification to tribal health jurisdictions wherever notification is required to local health jurisdictions. The rules must be adopted by July 31, 2027.
Tribal data prepared, owned, used, or retained by the designated state agencies or by local health jurisdictions is exempt from public disclosure under the Public Records Act.
"Tribal data" means data or information that is specific to an individual tribe and includes public or private data or information on or about a tribe or its people subject to tribal rights of ownership and control. Tribal data also includes, but is not limited to: tribal membership; tribal affiliation, events, and conditions within the tribe's jurisdiction and lands; information about tribal members and any persons living within the tribe's jurisdiction; tribal census tract; tribal land; and identification of tribal facilities, entities, and enterprises; and any individuals they serve.
"Tribal data sovereignty" means the inherent legal authority of tribes to:
(In support) Eight tribal data sovereignty principles were approved by the GIHAC in December 2024. This bill codifies those principles and supports ongoing work between the tribes and the agencies that are part of the GIHAC. As data becomes increasingly influential, it is essential that tribes uphold tribal data sovereignty and governance. When tribes control their own data, it is less likely to be used or misinterpreted in ways that cause harm. Instead, tribal data can be used to strengthen communities and guide sound, culturally grounded policy decisions.
Tribes are part of the governmental public health system. To be a partner, tribes need access to the same systems. These systems were not built with the consideration for tribes to have access to them. During COVID-19, tribes worked hard to get disease reporting data. Disease reports went to local health departments but not to tribes, and this slowed down the response. These principles will not be in place right away after the bill is signed, but having them in statute will help move work forward.
(Opposed) There is concern about the scope of the Public Records Act exemption. It would have broad applicability across many state agencies, and many of the agencies listed in the bill do not seem related to health data.
(Other) The bill attempts to address many important goals. There are concerns that the bill may be overbroad. It would apply to any datasets that include tribal members, and this would include data across many Health Care Authority programs. The bill discusses ownership interests but does not clearly define what rights are afforded to tribes in terms of permitting or restricting data use and access. It does not provide necessary caveats, such as when data sharing is required by federal law. The bill requires informed consent but does not specify how to achieve that consent from tribes. The Health Care Authority does not collect tribal affiliation across datasets, making it unclear how to apply the principles. As drafted, changes to governance will require funding.
(In support) Representative Debra Lekanoff, prime sponsor; Alison Boyd-Ball, Confederated Tribes of the Colville Reservation; and Vicki Lowe, American Indian Health Commission.